{"id":5013,"date":"2024-09-26T10:45:11","date_gmt":"2024-09-26T08:45:11","guid":{"rendered":"https:\/\/moderaterna.se\/stockholm\/?p=5013"},"modified":"2024-09-30T14:22:34","modified_gmt":"2024-09-30T12:22:34","slug":"moderaterna-kraver-gemensamt-arbete-for-att-sakerstalla-ratt-vard-for-me-cfs-patienter","status":"publish","type":"post","link":"https:\/\/moderaterna.se\/stockholm\/nyhet\/moderaterna-kraver-gemensamt-arbete-for-att-sakerstalla-ratt-vard-for-me-cfs-patienter\/","title":{"rendered":"Pressmeddelande: Moderaterna kr\u00e4ver gemensamt arbete f\u00f6r att s\u00e4kerst\u00e4lla r\u00e4tt v\u00e5rd f\u00f6r ME\/CFS-patienter"},"content":{"rendered":"\n<p><strong>Moderaterna kr\u00e4ver gemensamt arbete f\u00f6r att s\u00e4kerst\u00e4lla r\u00e4tt v\u00e5rd f\u00f6r ME\/CFS-patienter<\/strong> <br>Den 24 september 2024 samlades ett stort antal patienter och anh\u00f6riga f\u00f6r att demonstrera mot de f\u00f6rs\u00e4mringar som skett i v\u00e5rden f\u00f6r patienter med l\u00e5ngvarig sm\u00e4rta, utmattningssyndrom och ME\/CFS i Region Stockholm. Demonstranterna har drabbats h\u00e5rt av nedl\u00e4ggningen av specialistmottagningen Brag\u00e9e och av bristen p\u00e5 alternativa v\u00e5rdinsatser.<\/p>\n\n\n\n<p>Moderaterna, Kristdemokraterna och Liberalerna tar nu initiativ till konkreta \u00e5tg\u00e4rder f\u00f6r att s\u00e4kerst\u00e4lla att v\u00e5rden f\u00f6r denna patientgrupp f\u00f6rb\u00e4ttras. Tillsammans har vi l\u00e4mnat f\u00f6ljande f\u00f6rslag till h\u00e4lso- och sjukv\u00e5rdsdirekt\u00f6ren:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Att tillsammans med patientf\u00f6rening och kunnig medicinsk profession ta fram ett kunskapsunderlag om ME\/CFS riktat till prim\u00e4rv\u00e5rden.<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Att inleda en dialog med Karolinska universitetssjukhuset med syftet att snarast m\u00f6jligg\u00f6ra f\u00f6r Karolinska sjukhuset Huddinges mottagning f\u00f6r postinfekti\u00f6sa sjukdomar att kunna bedriva klinisk forskning i syftet att st\u00e4rka ett evidensbaserat medicinskt omh\u00e4ndertagande av patienter som lider av ME\/CFS.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Att inf\u00f6ra ett akademiskt specialistcentrum i syfte att utbilda andra specialister, samt skapa f\u00f6ruts\u00e4ttningar f\u00f6r forskning kring patientgruppen. Syftet med det senare \u00e4r att kunna hitta behandlingsmetoder till denna grupp.<\/li>\n<\/ul>\n\n\n\n<p>Patienterna vid demonstrationen vittnade om det stora lidandet som uppst\u00e5tt efter att specialistmottagningar st\u00e4ngts och v\u00e5rden flyttats \u00f6ver till prim\u00e4rv\u00e5rden, som saknar tillr\u00e4cklig kunskap om dessa komplexa diagnoser. M\u00e5nga patienter tvingas nu s\u00f6ka v\u00e5rd utomlands eller f\u00f6rblir utan v\u00e5rd, vilket i vissa fall lett till tragiska konsekvenser.<\/p>\n\n\n\n<p>&#8211; Jag n\u00e4rvarade vi demonstrationen f\u00f6r att lyssna, inte f\u00f6r att prata. Vi fick h\u00f6ra hemska ber\u00e4ttelser om anh\u00f6riga som tagit sina liv och patienter som inte f\u00e5r den v\u00e5rd eller medicin de beh\u00f6ver f\u00f6r att kunna leva. Detta kaos \u00e4r direkt skapat av S, MP, V och C, som st\u00e4ngt specialistmottagningar och h\u00e4nvisat till en prim\u00e4rv\u00e5rd som inte \u00e4r rustad att m\u00f6ta dessa patienters behov. Det \u00e4r otroligt olyckligt, s\u00e4ger Axel Conradi, sjukv\u00e5rdspolitisk talesperson f\u00f6r Moderaterna i Region Stockholm.<\/p>\n\n\n\n<p>Det \u00e4r nu avg\u00f6rande att Region Stockholm \u00e5terst\u00e4ller den v\u00e5rd som patienter blivit ber\u00f6vade och s\u00e4krar tillg\u00e5ngen till den medicin de har r\u00e4tt till. M\u00e5nga l\u00e4kare vill hj\u00e4lpa, men hindras av v\u00e5rdsystemets brister. Vi m\u00e5ste nu agera snabbt f\u00f6r att m\u00f6ta dessa patienters behov och s\u00e4kerst\u00e4lla att de f\u00e5r den v\u00e5rd och behandling de f\u00f6rtj\u00e4nar.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Moderaterna kr\u00e4ver gemensamt arbete f\u00f6r att s\u00e4kerst\u00e4lla r\u00e4tt v\u00e5rd f\u00f6r ME\/CFS-patienter Den 24 september 2024 samlades ett stort antal patienter och anh\u00f6riga f\u00f6r att demonstrera mot de f\u00f6rs\u00e4mringar som skett i v\u00e5rden f\u00f6r patienter med l\u00e5ngvarig sm\u00e4rta, utmattningssyndrom och ME\/CFS i Region Stockholm. Demonstranterna har drabbats h\u00e5rt av nedl\u00e4ggningen av specialistmottagningen Brag\u00e9e och av bristen [&hellip;]<\/p>\n","protected":false},"author":55,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"4558,1906,2163,979,4749,957","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1],"tags":[],"subject":[],"class_list":["post-5013","post","type-post","status-publish","format-standard","hentry","category-nyhet"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.8 (Yoast SEO v26.8) 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